Albinism Home: Days Spending with TFish

Albinism Home is a public service platform designed to help and support albinos and their families living in China. The organization's main goal is to improve living standards and promote equal participation in society for albinos. Albinism Children's Home is in Xi’an, Shanxi province.

Albinism Home is a public service platform established in 2008. The organization aims to improve loving standard and promote equal participation in society for albinos. The organization has been registered as a non-profit organization to care and support albinos and other rare diseases in Xi’an province.

Albinism Home implemented jobs on follow aspects. 1) Living assistance—provide allowances for the families with albinism children. 2) Medical aid—provide rehabilitation and assistive devices to the poor families with albinism children. 3) Education support—provide prizes to the children with excellent performance at school. 4) Psychological care by means of internet and hotlines, providing counseling. 5) Consulting support—provide rehabilitation or referring information. 6) Workshops for the patients and the families. 7) Popularizing and advocacy—carry out activities to promote awareness in the public.

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We have cooperating with TFish since 2012. We got 3000RMB of support from TFish in the first year and became interactive partners. From 2013 to 2014 we continue to receive great support from TFish. During the workshop for the patients in 2014, 2 staff from TFish exchanged views, which improve their understanding for the albinism patients and what we were doing. Meanwhile they knew the difficulties we were facing. We did not have full-time staff, so work could not be done on time. We expressed our enthusiasm to call for more people to participate in. We would think about the development of the organization in the meantime. 

It has been 3 years since we join TFish community. We learned from each other and developed together. Each of our blogs received cares and interaction from the staff of TFish. The way of public service is long, but we are inspired to work together with our partners. Looking back the ways we were going through, we benefited a lot from transparent finance. We had actually achieved clear financial management before we met TFish compared to other grass-root NGOs, but we had not opened on the internet, nor published on 3rd party platform. The public knew little about us and we could not raise enough money. 

Transparent and open finance of TFish benefited us a lot. We shared our capacity with other organizations. We developed a financial management system that fit the small organizations as us. Meanwhile, annual financial information was opened to the public so as to have a better connection with the public. 

Hope we will hand in hand with TFish and make progress in the future. 

Original Article Written by Cuiyan Hu, translated by Maggie Li, edited by Yanyan Zhang