Hemophilia Home is a nonprofit established to improve the quality of life for patients with hemophilia by collecting knowledge on hemophilia and assisting poor patients.
In January, 2013, Hemophilia Home sent an application to World Federation of Hemophilia (WFH), hoping they could send medicine to Beijing via airmail as soon as possible. The next day, WFH sent out medicine via Federal Express. The medicine arrived at Beijing Airport on January 31, but then we were presented with new difficulties. We had to pay the high tariff and value-added tax just to accept the donation. Additionally, the medicine was close to expiring, and we had to find a solution.
Our motivation lies in trying to relieve our patients' suffering. We started to find relevant sectors, but there was no progress by February 23. In desperation, we sent an e-mail to WFH and asked them to take back the medicine and send it to other countries to avoid waste, but WFH replied that we could not return the medicine. If it could not go through the customs successfully, it had to be destroyed on the spot. With this reply, we promised to make our last effort to WFH.
On February 26, 2013, with over 20 days of hard work and unremitting efforts, the Home finally received tax cuts from the customs, meaning many of our patients could be treated in time, preventing threats of death and illness.
On February 27, 2013, 200 bottles of blood coagulation factor IX donated by WFH were sent to Hemophilia Treatment Center of Shandong province. The latest news about the medicine donation was released to the website so that hemophilia patients who applied for the aid could contact Hemophilia Treatment Center as soon as possible.
On February 28, 2013, Guan Tao visited Director Zhang Ming in Jinan City. He hoped Zhang Ming could assist the hospital to do the treatment for the patients with the donated medicine.
It has been a journey full of hardships.
Original article was written by Zheng Liu, translated by Maggie Li, and edited by Yanyan Zhang
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