Hemophilia Home is a nonprofit established to improve the quality of life for patients with hemophilia by collecting knowledge on hemophilia and assisting poor patients.
My son, born in 2010, brought a lot of happiness to my family. My child grew up day by day, but his body began to show black and blue marks when he was 7 months old. But I did not pay special attention to this, because I worked in the city and I thought it was normal that a child would fall over.
This was until December 2011 when I found my child’s mouth was bleeding, oozing a little, not much, but this blood could not be stopped. He had been bleeding for 4 days when I took him to the hospital. The doctor said it was a blood problem and asked us to take him to Nanjing Children’s Hospital. My son was diagnosed with hemophilia and had to transfuse FVIII regularly. But this illness cannot be completely cured and FVIII transfusions cost a lot of money.
My family is poor and the treatment costs so much money, so my relatives urged me to abandon the child. Seeing my wife spending her days in tears and without food, I had to plan to give up my child.
I had planned to take my child to Xi’an and leave him in a big hospital, which might be better for him. But when I saw my son’s innocent smile and my wife’s unwilling eyes, I blamed myself deeply and felt pain in my heart. I decided to take my child back home and never think of giving up him again.
Now I am working hard to earn as much money as possible for my son. Though my pay is not high, I will try my best. Whatever the result, I will never give up.
Original article written by Shibo Sun, translated by Maggie Li and edited by Yanyan Zhang
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