Iseek Cultural Center is a public welfare organization initiated by patients with PAH (pulmonary artery hypertension), which aims to provide support and service for people with invisible disabilities as PAH.
People with PAH are truly angels without wings. They have to suffer through many difficulties, such as chest distress, difficulty breathing and anoxia. PAH is difficult to diagnose, expensive and has no cure. Marriage, children and work are often unsustainable to PAH sufferers.
During the national day holiday, we hosted an activity wherein we painted people's lips blue and took their picture in front of a symbolic building in Guangzhou. The purpose of the activity was to bring more attention to this rare, hidden and deadly disease.
On the morning of the 5th, local volunteers with blue lips came to the Zhuhai Plaza subway entrance.They held the Iseek banner as they walked along the road. They attracted a lot of attention from people and they told everyone all about PAH.
Jiji, a member of Iseek and a PHT patient, helped to paint the lips of many children. We chose the blue color because PAH patients often have blue lips from a lack of oxygen. We hope this activity will help people to understand the disease.
Chen, a doctor at the Guangzhou Institute of Respiratory Disease, joined the group of volunteers. In the picture below he is explaining PAH to American tourists.
Original article written by Fan Zhe, translated by Maggie Li, edited by Yanyan Zhang
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