LRS: Xinyue Follow-Up Report

More than simply providing medical treatment, TFISH believes compassionate patient care is essential to a healthy recovery! Hospitals can be tough for young patients, and TFISH staff provide activities for our patients after their heart surgery.

Xinyue is 4 and looks grown-up.

Xinyue underwent heart surgery more than three years ago on June 22nd 2011. Her family has since then moved to Yunnan Province, but they would come back to Little Red Scarf hospital each year for a check-up. Unfortunately her scans recently revealed complications.  

The doctor found Xinyue’s belly swollen with liquid, to the point where she had trouble walking properly. It was difficult finding a cure and her parents proceeded to take her to four hospitals. Each hospital saying the same. TFISH staff put the family in touch with Director Dong Yifei of the Little Red Scarf hospital and he found that her pulmonary artery was not growing. We tried to get further help for XinYue and her family, but cannot find a hospital to conduct this procedure. 

I called Xinyue’s parents twice but was unable to reach them. When I called again on August 26th, Xinyue’s father told me that they decided not to visit anymore hospitals. They are already back in Yunnan and Xinyue has been taking diuretic, potassium, and cardiac drugs ever since getting back and her edema is a little better. Now all she can do is to continue taking drugs. I will keep you all updated Xinyue’s condition, and TFISH staff will stay in touch with her family. We hope that all the Little Red Scarf recipients can lead healthy lives, but complications do happen. We hope to create a community of support for Xinyue and her family so they can find the medical care she needs. Please send positive vibes out to Xinyue!! 

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We brought Xinyue fruits and nutritional supplements. Hopefully she likes them.

Xinyue loves drinking water, but the doctor asked her parents to control her water intake, so she is always crying and asking for water.

Translated and edited by EV Intern Allison Zhang