Hemophilia Home is a nonprofit established to improve the quality of life for patients with hemophilia by collecting knowledge on hemophilia and assisting poor patients. Hemophilia Home is in Beijing, China.
To build a stage for the hemophilia patients to show their talents in 2014, we organized a choir, which had been a dream of the workers of Hemophilia Home. For all kinds of reasons as money or medicine shortage and performing opportunities, the dream had not been fulfilled until 2014.
In a activity hosted by Soong Ching Ling Foundation, we connected with the organization. The activity is an art festival for youth. Art groups who are invited on the show have to experience rounds of selection. Considering we are not professional art troupe. After we told the staff of Soong Ching Ling Foundation our actual situations, they decided to discuss in the meeting. We were waiting nervously.
Soony Ching Ling Foundation agreed our demands and promised to arrange our performances in priority, because they did not want our children to wait for a long time. With the news, we could not help jumping for joys. We were inspired to be accepted and confirmed the other public welfare organization. We would value the hard-earned performing opportunity.
On July 27, it was the first rehearsal of the choir. Children and their parents and our volunteers came to the site early. At the beginning, the children seemed shy and restrained. They were sitting silently and listened to the arrangement of the teacher. After a while, they became naughty and did what their like as falling behind the rhythm, looking around, missing the lyrics, playing hide-and-seek, etc. Some of parents gave instructions patiently and some of them criticized strictly. Some of the parents asked their children out and talked to them separately. Luckily, the voluntary teacher is professional and experienced. The chorus became harmonious.
Early in the morning, our 2 staff began to busy for all kinds of logistic chores for the performance. During the lunch time, the staff and volunteers discussed for every detail. When they got everything settle down, they were sweating all over. For the whole day’s hard work, they were worn out, but they were still happy. It’s our patients’ own choir. Giving a name to it means a lot. People advised to collect name from the internet. There are various names coming: Little Red Person, Red Boat, Red Dragon Fly, etc. Finally, the name of Red Apple made an impression, and the name was decided.
In Changzhou city, Jiangsu province, with the principles of “serve the society, dedicate love, help others and delight ourselves, Changzhou Volunteers Association actively promotes volunteerism around the city.
In the morning of August 21, 15 volunteers visited Red Sun Nursing Home. They hope to bring warmness and happiness to the elderly living there.
When they arrived at the nursing home, they were divided into groups and began to take hot water for the elderly to soak feet, cut nails, clean the rooms and chat with them.
For the whole morning, we heard various life experiences, for wonderful or bitterness. We were brought back to a period of severe material shortages. Looking at the wrinkles on their faces, we saw the signs of aging. We did whatever we can do at nursing home. We released our energy and received full life experience in the meanwhile.
Original article written by Yuan Kong, translated by Maggie Li, and edited by Yanyan Zhang
Pictured: Primary school kids in impoverished rural schools eating free lunches from TFISH donations.
May you and your family have a wonderful Lunar New Year. Let's spread the prosperity in our own lives to communities in need!
We are currently raising money to support a very complex surgery for 14 year old Li Yong. He was born with a congenital heart defect and his family has not been able to pay for his treatment. Join us to bring a happy new year for Li Yong's family.
TFISH will be holding a booth and fundraising at this year's Tet Festival Sat 02/21 and Sun 02/22 at the Santa Clara County Fairgrounds. Come check us out!!
Happy Year of the Sheep from your friends at Transparent Fish Fund! Help us bring a happy new year for a special boy across the world.
May you and your family have a wonderful Lunar New Year.
Let's spread the prosperity in our own lives to communities in need!
Tired of the same ol' greeting cards and overpriced dinners every Valentine's Day? What if this year we turn our attention to another matter of the heart? Join TFISH in fighting congenital heart defect, one person at a time.
Xi’an Alliance works to promote a spirit of volunteerism. Many student volunteers are trained to participate in public welfare activities and social work. The main office is in Xi’an, China.
On August 10th 2014,children who lost their parents were settled at the temp houses. They still felt panic brought by the disaster. The teacher came to the site and tutored the children voluntarily. Seeing the stationeries and living necessities, they said thank you to us with innocent smiles. We were moved to tears……
A village was buried. There were over 100 persons. Only one was survived. There are mountains around the quake-hit areas. The villages were sparsely located. Most of living areas are concentrated at the bottom, middle and top of the mountains, which brought difficulties to the relief. Hold on, Ludian. We are with you.
At night of August 10, the rain storm hit us. Water flowed to the tents. We prayed in the darkness. We concern a lot about the people at the quake-hit areas. On August 11, the weather changed a lot. Our team members were involved in relief work when they came to the site, helping the villagers to transfer their belongings and building the tents. They slept or sat on the ground when they were tired.
Work has been done. 20 persons came for the first echelons and 19 for the second echelons. Just 12 persons returned. 27 persons continue to work for the relief. Brother Yi said goodbye to us. Hold on, my lovely team mates.
Original article written by Bin Kong, translated by Maggie Li, edited by Yanyan Zhang
Xingzhi Migrant Art School is a non-profit organization that offers art lessons for the children of migrant workers who otherwise would not have this opportunity. This update was written by Director Gu, the founder of and a teacher at the Art School in Beijing.
The students at Xingzhi Migrant Art School has been making incredible progress. We even incorporated English to our lessons. The kids would practice vocabulary words associated with the art they were learning. Mr. Gu has been trying to incorporate different ways of teaching art and loves the reaction he has received from these new activities. Students are always full of curiosity and wonder. Below can see a picture some of the students made.
Original article written by Xiaochen Gu, translated by Maggie Li, Edited by Yanyan Zhang
Grounded on core values of respect, love, and service to the elderly, the Xin Yue Senior Citizen Service Center of Chongqing, China, promotes social work services for senior citizens and builds harmonious living environment for them.
Chinese Valentine’s Day was coming. Xin Yue Senior Citizen Service Center carried out an activity and 25 elderly people participated in the activity.
Before the activity, the staff visited 17 old couples and consulted their opinions. Many senior citizens were happy to know that the social workers had prepared the activity for them. They said valentine’s day is for young people. Most of couples have been accompanying with each other for decades. However, this romantic day is not only for young people. It is a special day to memorize their days spending together. Finally, many couples agreed to participate in the activity.
During the activity, the social workers encourage the senior citizens to share their stories. Many of them said life was more difficult when they were married, just a few things as a piece of quilt, a cupboard or a table in the room. The simpleness made them keeping accompaniment with each other for the whole life. When they shared their stories, the social workers played interactive games with the senior citizens. They enjoyed the games and their prized their spouse during the activity. The atmosphere became warm. Grandpa Luo had been hit by cerebral hemorrhage and he could not express with fluent sentences. He also prized his wife with “pretty“ and “good care taker”. His wife was happy and moved. Later, the social workers and volunteers taught the grannies to fold Chinese knots and taught the grandpas to fold roses. They were learning and doing seriously. With efforts, Chinese knots and roses were made. The couples exchanged gifts. Grandpa Li recalled the most romantic things he did with his wife. In the end, he said the most romantic thing is to participate the activity with his wife. We wish them happy and good health.
The volunteer was teaching the couples on how to fold Chinese knot and rose. Granny Zhang has been taking care of her husband. Her husband was gratitude her love though he could not speak.
Original article written by Ling Feng, translated by Maggie Li, edited by Yanyan Zhang
Our Little Red Scarf program has expanded to Yunnan province and provides financial support and encouragement to children suffering from congenital heart disease. In addition, they provide families with post-operative care and help the children sustain a healthy lifestyle.
Tired of the same ol' greeting cards and overpriced dinners every Valentine's Day? What if this year we turn our attention to another matter of the heart?
Congenital Heart Defect (CHD) Awareness Week is coming up, and we have the opportunity to give the gift of love to someone in need.
Though many have never heard of the disease, CHDs are the most common form of birth defect found in children around the world. In fact for every 30 seconds, a child is born with this life threatening condition. Fortunately, we have the resources in the US to treat most infants at birth. Babies born in developing countries however are not as lucky, and too many people die prematurely from heart failure that could have been prevented with early detection and treatment.
This week in honor of CHD Awareness Week, our LRS Yunnan program is hoping to bring a long and healthy life to a young boy living in rural China.
Li Yong is a 14 year old kid with a very complex form of heart disease that takes two surgical procedures to treat. He has been living with the defect for far too long and his doctors fear he may not live much longer without treatment. After intensive fundraising and money from insurance, Liyong was able to undergo the first part of his surgery last month.
His family however, is unable to bear the costs of the second surgery. Both his grandparents have recently gone through illnesses and the family has used up their savings to pay for medical fees. After hearing about their case, Dr. James St Louis, of Childrens Heart Link agreed to perform Li Yong's surgery pro-bono. But even with this generosity, it is still not enough. The complications of Li Yong's surgery simply cost too much. The family still has to take on $10,000 in out of pocket fees.
This money is impossible for Li Yong's family to raise on their own. They live in a small home with very little means.
Give the ultimate gift of love this Valentine's Day. Join TFISH help Liyong fix his heart!
Little Red Scarf is in Lanzhou, Gansu province and provides financial support and encouragement to children suffering from congenital heart disease. In addition, they provide families with post-operative care and help patients sustain a healthy lifestyle.
Eight years ago, Jiale was diagnosed with very complex congenital heart disease and everything changed. His surgery costs more than what his parents earn as farmers, so his father moved to Beijing to find better work. Unable to come to terms with this hardship, Jiale's mother left their family at a time of great crisis. Jiale's only caretaker became his grandfather.
We met Jiale in 2009 and Little Red Scarf was able to provide funding and support for their family during Jiale's surgery. Little Red Scarf workers and volunteers take turns visiting Jiale and his grandpa everyday and encouraged and comforted them through the hardships they face again and again. The first surgery went well, but because of the complexity of Jiale's condition a second operation was necessary. In 2010, Jiale’s grandpa took him to the hospital for surgery consultation and the growth of a couple blood vessels in Jiale’s heart made it very risky to undergo a second surgery.
Jiale and his grandpa returned home but could not give up. For years, grandpa would always take Jiale hospitals in the region for second opinions. When we heard of their situation, LRS staff met up with Jiale again to discuss their options and offer our support. When we saw Jiale again, the young man before us is completely different from the one in the photo taken 4 years ago. He was now very somber and there was a tired look in his eyes. Grandpa told us that Jiale's sister was recently diagnosed with diabetes and the family has been struggling with this additional medical problem. The father has taken on a second job to meet the expenses, and the grandfather is continuing the farm on his own to make ends meet. Their family has gone through a lot.
We decided to return to our original hospital and speak with a specialist again to see if anything has changed. Jiale's grandpa had a calm look and seemed prepared for the bad news to come. Unfortunately, the doctor's opinion remained the same: the surgery was too risky. This time grandpa was able to accept the news. They will continue trying to live a healthy lifestyle but let nature run its course.
TFISH FUND BLOG
We update news and reports directly from the field written by our NGO partners daily.
PHOTOS & VIDEOS
IN THE NEWS