Albinism Home is a public service platform designed to help and support albinos and their families living in China. The organization's main goal is to improve living standards and promote equal participation in society for albinos. Abinism Children's Home is in Xi’an, Shanxi province.

Huhu has been volunteering with Albinism Children's home since 2012. She's good with computers and she took on the large task of managing the non-profit's website. It takes up a lot of time, but helping out this Children's home is meaningful for her. She also loves to interact with the kids there. For Huhu, albinism is a very personal issue, for she is albino herself. 

Unbeknownst to the public, many people with albinism could not attend public schools, and go to schools for the blind. This puts people with albinism at an inherent disadvantage. In a society where education is a sign of success and skill, students with disabilities find it difficult to compete in separate schools for the disabled. Huhu however, was able to stay in a public school, though due to her poor eyesight, she had to sit in the first row of the classroom and still had trouble seeing. At a young age, she started feeling disconnected from other children and this often led to low-self esteem.

Still, she was able to do well in school and soon became more confident and open about her differences with other people. She would smile and wave whenever people pointed at her. Her optimism and openness made popular around town. In 2005, she was admitted by Xi’an Technology University. She majored international economy and trade and had excellent scores.

After graduation however, she sent a lot of resumes out, but no responses came back. In September of the graduating year, the university gave her an internship opportunity and she was able to earn 600 yuan per month (roughly $100). After a few years of unsuccessful job hunting, she moved to Shanghai and found more stable employment. When she is not volunteering for the children's home, she works for is an international company, answering customer inquires over e-mail. While it has been a long journey, Huhu is staying positive and doing as much as she can to grow and learn from the world around her.  

From her own personal experiences, Huhu feels that society is becoming more inclusive for marginalized populations. However it is still difficult to get equal treatment for groups with special needs. That is why she spends her time supporting those like her. While it has and will always be an uphill battle, she won't give up. She is chasing a sunshine that can also belong to her and other "moonlight" children. 

Original Article Written by Cuiyan Hu, translated by Maggie Li, edited by Yanyan Zhang

Albinism Children’s Home is a public service platform designed to help and support albinos and their families living in China. The organization's main goal is to improve living standards and promote equal participation in society for albinos. Abinism Children's Home is in Xi’an, Shanxi province.

On June 16, 2013, the living library in the lobby of the Shanxi Provincial Library opened. 10 “living books” were “read” by the readers. 10 people shared their life stories face to face with the readers.

What is a living library? It is a way that people can act as a book and transmit their personal information. Their personal experiences can become the contents of the book and the author will develop certain themes, which will be provided to the readers.

The living library was organized by over 10 local NGOs in Xi’an. Their purpose is to convey the idea of multi-channel public welfare to the readers.

Xie Fubao, a volunteer of Albinism Home, participated in the story sharing activity. He is an editor and he is also the author of The One Who Is Chasing The Sun. He is albino and he is willing to share his perceptions and insights on life, hoping that more albinos will work and live happily.  

Original Article Written by Cuiyan Hu, translated by Maggie Li, edited by Yanyan Zhang

Abinism Children's Home is a public service platform designed to help and support albinos and their families living in China. The organization's main goal is to improve living standards and promote equal participation in society for albinos. 

We hope you can learn more about the children with albinism through their words and dreams. 

Liang Liang

My name is Liang Liang. I study in Beijing University of Chinese Medicine as a postgraduate. I am an albinism patient and people call us as Moon Child. My hair is all white and my skin is pale. I am so different when walking in the street. I only see one meter distance around me. I hope to be a doctor, an angle in white, so that I can help other people and make myself happy. 

Wanzi

I am an albinism IV patient with yellow hair and pale skin. Though my skin is not as pale as albinism I, my eyesight disturbed me in my development. There are difficulties in study, work and family as most of the albinism children do. Nevertheless, I could still gain strength and encourage from my patient friends and tried hard to change so much inconvenience. I think it needs our talents as well as people’s understanding and support. 

Abinism Children's Home is a public service platform designed to help and support albinos and their families living in China. The organization's main goal is to improve living standards and promote equal participation in society for albinos. 

When we first met Guanlu in Xi’an, the only difference between us was our skin and hair colors. As the founder and director of the Albinism "Moon" Children Home, he was terribly busy. Established in 2008, the organization has passed the registration as a private non-profit organization. Since then, the Moon Children Home has helped more albino patients gain greater courage and confidence.