Aili Myasthenia Gravis Association is dedicated to caring and helping those that suffer from myasthenia gravis, an autoimmune neuromuscular disease that causes muscle weakness and fatigue.
We come from an ordinary rural family. For a better life, we had to leave our children in our hometown and work in Guangdong.
In January 2013, my mother told us my daughter's right eye had strabismus. We took her to the city hospital and the doctor prescribed medicine. After a week, her right eye could not open. We were scared and quit our jobs and took her to see doctors. We went to several hospitals and wrote a lot of checks. The results finally came out--myasthenia gravis. I felt faint when I saw the result. I could not help weeping with a frustrated heart. It’s hard to image how I sustained my life in that period.
Then I found helpful information on the internet. I went to Guangzhou with my daughter for treatment. Seeing people look at my daughter strangely made me feel pain in my heart. We went to the hospital for many tests. My daughter became fearful of strangers as a result of this experience and it took a long time for her cheerful personality to come back. We were anxious whenever we thought about the treatment. We hope children like our daughter can be supported and receive better treatment. We really thank the loving people that have helped us.
Original article written by Xiaohui Zhang, translated by Maggie Li and edited by Yanyan Zhang
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