Aili Myasthenia Gravis Care Association: Our Daughter—Ming Shi

Aili Myasthenia Gravis Care Association is dedicated to caring and helping those that suffer from myasthenia gravis, an autoimmune neuromuscular disease that causes muscle weakness and fatigue.

Ming Shi is my daughter. She was born on May 31, 2007. She brought the family a lot of joy. Then she got ill in 2008. She has been admitted to the hospital 4 times so far. She had surgery to install a pacemaker in 2010, which cost 60,000 RMB. The heart peacemaker has to be replaced every 8 years. Her illnesses has brought the family so much pain. 

On February 20, 2011, my son was born. I had to take care of 2 children and could not work. The whole family relies on the income of the children’s father, whose job is unfortunately unstable. The children’s grandparents are not able to help us due to poor health.  

Ming Shi is 7 and attends pre-school. She does well at school and takes medicine on time. She always asks me, “Mum, why aren't I getting better?” I am determined to treat my child no matter how hard this might be. The life of my child is my life. She will be better if we work together. I urge my child to study hard and become a doctor in the future.

We are an ordinary family with 4 people. We try our best and hope to change all of our misfortune. This is our story. 

Original article written by Xiaohui Zhang, translated by Maggie Li, and edited by Yanyan Zhang

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