Albinism Home is a public service platform designed to help and support albinos and their families living in China. The organization's main goal is to improve living standards and promote equal participation in society for albinos. Abinism Children's Home is in Xi’an, Shanxi province.
With half year of planning, workshop on medical aid for albinism children in Henan was held from Nov. 21 to 22.
The activity was hosted by Albinism Home. Organizations as media, Rare Diseases Development Center, Handicap International, etc. gave great support to the activity. One behalf of the children, we would like to express our gratefulness.
The activity was made up by experts lectures, sharing by the children and their parents and performances. The activity lasted 2 days with about 100 participants. Professors working on genetic diseases and ophthalmology were invited to give lectures.
In the afternoon of 21st, teacher Guan who is from Albinism Home explained albino and its rehabilitation knowledge. Professor Bai then did psychological counseling. In the evening, we held party and the children gave wonderful performances.
In the morning of 22nd, doctor from First Affiliated Hospital of Zhengzhou University gave lecture on genetic albino and prenatal diagnose. Professor Wu who is from 4th Affiliated Hospital gave lecture on eyesight protection. In the afternoon, personal sharing was done.
We are the same as normal people, though we have less population. We also shine when we have capability.
For 2 days, we not only met our old friends, but got to know new friends. The end of the workshop did not mean the end of work in Henan. We learned from each practice and accumulate experiences. We believe all albinism children will be better. Thank again to those who supported the activity and all participants for the successful activity in Henan.
Original Article Written by Rui Shu, translated by Maggie Li, edited by Yanyan Zhang
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