Behcet’s Patient Association: A Rare World in Lens

Behcet’s Patient Association was established in May, 2005. It provides care and help services for behcet patients, aiming to promote understanding and respect to people with behcet among the public, eliminating discrimination and protecting their equal rights on medical care, education and employment.

A photo exhibition with the theme of 'Rare Diseases' was opened in Beijing. Famous CCTV hosts and the director of the China Rare Disease Development Center were invited. 

From February 28 to March 10, the exhibition was held in the Beijing Capital Mall Crystal. The whole exhibit was open to the public. At the opening ceremony, Wang Chong, one of our patients, her mother and a photographer came to the site and conducted interviews. Wang Chong went to view her photos and touched them with her fingers while she listened to her mother's introduction.  

A doctor was moved after seeing Wang Chong’s photos. After talking with the volunteers, I bought a book—I Want a Blooming Life. I gave suggestions for the development of the Behcet’s Patient Association and arranged activities for the distribution of posters related to the Association during the exhibition period.

Original article written by Yong Chen, translated by Maggie Li, and edited by Yanyan Zhang

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