Hemophilia Home is a nonprofit established to improve the quality of life for patients with hemophilia by collecting knowledge on hemophilia and assisting poor patients. Hemophilia Home is in Beijing, China.
Over 40 hemophilia patients came from Tianjin, Qingdao, Beijing, Daliang and Changcun to Beijing for a networking event that lasted for 2 days in October. The event was hosted by Hemophilia Home in cooperation with charity federations of 5 cities.
The participants included over 40 hemophilia patients, who were supported by their local charity federations.
During the activity, the people in charge of the local charity federations introduced basic information for the patients, including where the funds were coming from, the national policies, and the development of future local projects. Liu Ying, the director of the Physiotherapy Department in the Beijing Concordia Hospital and Xiao Juan, the Director of the pediatrics department, were invited to give lectures during the opening ceremony.
In the afternoon, the staff of Hemophilia Home and volunteers led the children to the Beijing Science and Technology Museum.
The evening was so fantastic. The patients performed wonderful performances for the audience. Their performances truly expressed their thankfulness to their parents, Hemophilia Home, doctors, and nurses.
Then the parents and their children visited Beijing University on October, 20. The volunteers at Beijing University introduced the long history of the university to the children. In return the children promised to study hard in order to contribute to society in the future. Guan Tao said Hemophilia Home would help and support hemophilia patients as always and try hard to make a better future for them.
Original article written by Teng Xue, translated and edited by Yanyan Zhang
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