Hemophilia Home is a nonprofit established to improve the quality of life for patients with hemophilia by collecting knowledge on hemophilia and assisting poor patients.
I was married in 2001, and the income of my family was low. I was diagnosed with congenital heart disease when I was a child and was unable to work. My wife works in a shopping mall as a cleaner and earns 600RMB (95 dollars) a month.
Our child was born on February 7, 2004. Our baby was found to be bleeding on the second day after his birth. He was sent to Harbin Hospital and was diagnosed with hemophilia. We spent 40,000 RMB to treat our child. Our friends did not want to lend money to us and we had to take our son back from the hospital and take care of him ourselves. Luckily, the community residents committee got to know our situation and gave us basic subsistence allowances.
My wife had to take care of me and our child every day. Other children could go to school, but our child couldn't. He could not even get down or up the stairs. We could not afford to stay in a hospital, so we gave our child his injections ourselves. We have to borrow money every month for medicine.
Original article written by Zheng Liu, translated and edited by Yanyan Zhang
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