Iseek Cultural Center is a public welfare organization initiated by patients with PAH (pulmonary artery hypertension), which aims to provide support and service for people with invisible disabilities as PAH.
Recently we held a propaganda activity in our complex. Someone came up and asked our volunteers if their blue lip meant they were born in the 80s and 90s. She hypothesized that their lips were from a lack of exercise. She did not understand our activity!
However, we kept on explaining relevant knowledge to passing people. People with PAH look normal in their appearance so sometimes people think they are just lazy. They do not know how the illness tortures the patient. It is great to don the blue lips and help people understand.
The misunderstanding we encountered during the activity made us realized the importance of propaganda. If we do not tell people what PAH is- who will come and help us. We still have a long way to go and we have to work together.
Original article written by Zhe Fan, translated by Maggie Li, Edited by Yanyan Zhang
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