Iseek Cultural Center is a public welfare organization initiated by patients with PAH (pulmonary artery hypertension), which aims to provide support and service for people with invisible disabilities as PAH.
On November 16, 2013, together with Beijing Iseek, FYSE, an organization doing social enterprise research and training went to the classroom of Beijing 101 Middle School. They brought public lessons on pulmonary hypertension (PAH).
Huang Huan, the person-in-charge of Iseek shared his process of diagnostics and treatment of PAH in fluent English. He wanted to use his story to explain what PAH is as well as the difficulties that a patient has to face. The students got to know that the illness is more than a medical problem and is also related to the patients’ families and medical organizations. Meanwhile, people with PAH face social problems in school education, employment and marriage.
After the introduction for the “Blue Lips” activity, the students were inspired and started to act. Some of them painted their faces as a cat and some of them drew a blue loving logo on the face. Some students even painted their eyelids blue.
The illness may seem far away from the students. They may not be able to feel the pain brought on by PAH, but now the word PAH will always be in their mind. If anyone mentions blue lips in the future they can all say "I understand."
Let's care for people suffering with PAH together and unite with blue lips.
Original article written by Zhe Fan, translated by Maggie Li, Edited by Yanyan Zhang
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