Little Red Scarf is in Lanzhou, Gansu province and provides financial support and encouragement to children suffering from congenital heart disease. In addition, they provide families with post-operative care and help the children sustain a healthy lifestyle.
Wen Hui is 8 and suffered from congenital heart disease (Tetralogy of Fallot, cyanotic type ). She attends primary school and her mother had to hold her on the back to and from school. She would be out of breath when walking. Free breathing is a really a luxury thing for her.
We took a group of pictures for her before the surgery. Because of oxygen shortage, her lips and cheeks were purple. Let’s know Wen Hui’s life before the surgery via the group of pictures.
The lips of children with congenital heart disease would become light purple when they do exercises. Wen Hui could not do any exercises. She could not even walk. When she sat still, her lips and cheeks were as the color in the photo. Her fingers were clubbed and her palms of hands became purple due to oxygen shortage. Her mother’s fingers and palms showed the normal color.
According to the family, Wen Hui was always squat since she was able to walk. Most of time, she had to squat so that to ease the pressure of her heart. When she reached school age, she could not even walk to school. Her parents had to hold her on the back to and from school every day. Wen Hui was happy to climb on her father’s broad back, for her father’s strong back is always the safe harbor of the whole family.
Original article written by Yujie Yun, translated by Maggie Li, and edited by Yanyan Zhang
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