Little Red Scarf is in Lanzhou, Gansu and provides financial support and encouragement to children suffering from congenital heart disease. In addition, they provide families with post-operative care and help the children sustain a healthy lifestyle.
Dayong would regularly go to Xi’an with his father to get the special medicine he needed, called Ventavis. It was quite an expense for a rural family like theirs. Dayong applied to get the medicine for free, and to his delight, he was approved! It was like winning the lottery for him! He could take Ventavis for free for 9 months. Here's that touching moment in his own words:
I received a phone call one day and was informed that my application for free Ventavis had been approved.
It’s great news for me. To apply for the medicine, I had to travel on worn-down buses, and I nearly thought of giving up. My father ate a lot of instant noodles. We were soaked by the heavy rain, stayed in wet hotels, and were bitten by mosquitoes. I am lucky to get the support. My parents could finally feel relieved a little bit. It means I can get the best targeted therapy. (Ventavis for 9 months is worth 50,000 RMB or about $8,000 USD.)
I still have to face the difficult reality while I am enjoying the good news. I know there are a lot of people like me in China who need to be helped. I still have a long way to go.
I feel guilty when I think of quarrels with my father. As a patient, I was fussy about my breakfast and gave my mother some trouble. I ate while avoiding some certain foods. I deeply regret it.
I will be more cautious, peaceful, and cherishing.
Thank you, Little Red Scarf!
Original article written by Ying Guan, translated by Maggie Li, and edited by Yanyan Zhang
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